NF Worldwide


In any small community and even in some big ones, it is easy for patients with NF to feel that nobody in the community knows much about NF. However, it is helpful to realize that NF is a worldwide concern, and there is a worldwide NF community. A good place to see that is on the NF-Network website (www.neurofibromatosis-network.org/en/) which provides a list of NF organizations around the world. As another indication of the international efforts on behalf of NF patients, the Children’s Tumor Foundation Conference in 2018 will be held in Paris, France.

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