Welcome to neurofibromatosis tennessee

March 9, 2026

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Dear Friends of NF Tennessee, 

 

The start of our Grant Programs application period is March 10, 2026, with applications due by May 10, 2026. 

 

What started as the Laptop Giveaway Program in 2020 continues to grow.  Art Supplies and Musical Instruments Grants were added in 2023. Together these programs have had over 30 awardees! Follow up from these individuals has been great, demonstrating a wide variety of really wonderful personal accomplishments. The artwork for the 2025 holiday card is one beautiful example! Individual grants for specific activities and personal goals outside of art and music are sometimes considered. Please reach out to us at contact@nftennessee.org if you have any questions.

 

Link for Laptop Giveaway and Art / Music Grants Application:

 

https://forms.gle/z71cFTckukLHcXFCA

 

This year we are trying to focus attention on educational opportunities beyond high school by initiating the NF Tn Higher Education and Life Skills Grant Program. This award, is for individuals who are, or soon to be high school graduates, or are at least 18 years old, and have a specific educational or life skill development program that they are accepted to or enrolled in.  It will provide up to $1000 for books, supplies, travel, or other educational/training costs. The exact use is largely to be determined by the specific needs of the recipient. 

 

Link to Higher Education/Life Skills Grant Application:

 

https://forms.gle/Bn8NbYF9it8HRmqh9

 

Higher education and Life Skills development can play an important role in adult life for everyone. These are underutilized in the NF community. For example, in Mikaela Bradley's recent survey study of adults with NF1 about 41% of NF1 responders completed a college bachelor's degree or beyond. Another 12% had received an associate's degree. These figures are lower than in the general population. NF also includes a substantial group of individuals for whom it is difficult to develop skills for an independent adult life. These kinds of observations support taking measures to encourage further education for adults with NF, especially young adults.

 

The applications can be submitted electronically using the google forms. They can also be printed, filled out, and mailed as a paper version to:

 

NF Tennessee 

PO Box 150661

Nashville, Tennessee 37125-9998

 

All applications are due by May 10, 2026. 

 

Awards will be announced as part of NF Awareness Month and May 17 World NF Awareness Day activities at the Annual NF Tennessee Picnic on Saturday May 16, 2026 at Warner Park in Nashville. 

 

It is good to get things going again after the blur that January and February were in the Nashville area. There are more events of interest coming up in later March and April, so watch for more emails, keep checking in on the NF TN website, ... and then tell your friends!

 

Thanks for your interest!

Paul Moots,

for NF Tennessee