Welcome to neurofibromatosis tennessee

September 19, 2024

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Dear Friends of NF Tennessee,

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          Watch your step ... especially this time of year ... 

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          Yes, that's right friends ... Fall is here!!!

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This Fall is bringing a bounty of activities for the NF community. We have information on some great edcuational activities plus things to get out an do. These virtual events in particular are providing a lot of great information, and along with them comes the  opportunity to ask experts, and learn the very latest. So keep watching the event calendar and take advantage of them. Do yourself a favor ....

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NF Tennessee Community Engagement Survey – Bring Your Great Ideas Out for a Try

And then do us all a favor... We have been receiving some really useful response to our Community Engagement Survey, getting about 3 each month.  We would love to get twice as many for a few months, and then present that information in a virtual webinar type event. Any idea that you can put in is a great favor to us all! The survey has 18 statements or questions to respond to with a ranking from 1 to 5 based on whether and how strongly you agree or disagree. Then there is an open question so you can tell us what your best ideas are. And there is a little 'thank you' for taking the time! The survey can be filled out and submitted online, or printed to fill out and mail to us at: NF Tennessee, PO Box 150661, Nashville, Tennessee 37215-9998.​

So please take 5-10 minutes and let us know what is important to you, and what your good ideas are, by filling out the NF Tennessee Community Engagement Survey here: 

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https://forms.gle/2YBaLnx4UiDjwWKs7

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13th Annual Memphis #NFStrong Run/Walk

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As certain to come as the Harvest Moon, this Fall brings the GrandMother of all Tennessee events supporting NF, with more punch than the Memphis Horns, and almost as old as the Pyramids, they will have you "rollin' down the river ... " That's right ... , it's the 13th Annual Memphis #NFStrong Run/Walk. It will take place on Sunday November 10 at Overton Park. Ms. Carrie Wilie and the Memphis crew really know how to make it special fun for a great cause. 

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This year the Memphis event is adding a new dimension with an educational seminar and luncheon, also available virtually, on Saturday November 9 with Dr. Eniko Pivnick, M.D. headlining the event! (Flyer to be posted soon.)

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Once again Team NF Tennessee will be participating ... or you might call it "running", in person. So whether you go in person or do your run/walk virtually, please join our team when you sign up.  We would love to have people from all over Tennessee and far beyond. And Skyler says the weather will be great too!

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Every year when the Memphis #NFStrong event rolls around I always find myself in a mashup saying "I'm goin' to Graceland, in Memphis Tennessee ... feets don't fail me now!!!"

Hoping to see you all there!
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Paul Moots, for NF Tennessee

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