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September 19, 2024

Dear Friends of NF Tennessee,

          Watch your step ... especially this time of year ... 

          Yes, that's right friends ... Fall is here!!!

This Fall is bringing a bounty of activities for the NF community. We have information on some great edcuational activities plus things to get out an do. These virtual events in particular are providing a lot of great information, and along with them comes the  opportunity to ask experts, and learn the very latest. So keep watching the event calendar and take advantage of them. Do yourself a favor ....

NF Tennessee Community Engagement Survey – Bring Your Great Ideas Out for a Try

 

And then do us all a favor... We have been receiving some really useful response to our Community Engagement Survey, getting about 3 each month.  We would love to get twice as many for a few months, and then present that information in a virtual webinar type event. Any idea that you can put in is a great favor to us all! The survey has 18 statements or questions to respond to with a ranking from 1 to 5 based on whether and how strongly you agree or disagree. Then there is an open question so you can tell us what your best ideas are. And there is a little 'thank you' for taking the time! The survey can be filled out and submitted online, or printed to fill out and mail to us at: NF Tennessee, PO Box 150661, Nashville, Tennessee 37215-9998.

 

So please take 5-10 minutes and let us know what is important to you, and what your good ideas are, by filling out the NF Tennessee Community Engagement Survey here: 

https://forms.gle/2YBaLnx4UiDjwWKs7

 

13th Annual Memphis #NFStrong Run/Walk

As certain to come as the Harvest Moon, this Fall brings the GrandMother of all Tennessee events supporting NF, with more punch than the Memphis Horns, and almost as old as the Pyramids, they will have you "rollin' down the river ... " That's right ... , it's the 13th Annual Memphis #NFStrong Run/Walk. It will take place on Sunday November 10 at Overton Park. Ms. Carrie Wilie and the Memphis crew really know how to make it special fun for a great cause. 

This year the Memphis event is adding a new dimension with an educational seminar and luncheon, also available virtually, on Saturday November 9 with Dr. Eniko Pivnick, M.D. headlining the event! (Flyer to be posted soon.)

Once again Team NF Tennessee will be participating ... or you might call it "running", in person. So whether you go in person or do your run/walk virtually, please join our team when you sign up.  We would love to have people from all over Tennessee and far beyond. And Skyler says the weather will be great too!

Every year when the Memphis #NFStrong event rolls around I always find myself in a mashup saying "I'm goin' to Graceland, in Memphis Tennessee ... feets don't fail me now!!!"

 

Hoping to see you all there!

Paul Moots, for NF Tennessee

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Upcoming Events

Sept - November 2024

Alexion - Virtual Educational Event

Koselugo and NF1 Plexiform Neurofibroma

Thursday 9/26/24

7:00 PM Eastern

Register at

koselugo.com/events

or call 888-210-0174,

Music City Run for Dyslexia

Saturday 9/28/24

8:00 AM CDT

Shelby Park, Nashville

Join TEAM NF TENNESSEE with

password NFTN

Go to:

Music City Run for Dyslexia – 5K and 10K (dyslexiarun.com)

National Bananna Pudding Festival

October 5-6, 2024

Centerville, Tenn

(Benefitting CTF)

Go to:​

National Banana Pudding Festival – National Banana Pudding Festival | Oct 5-6, 2024

NF Central Plains -​ Research, Resouces & Refreshments 

Sunday October 13, 2024

2:00 - 4:00 PM Central Time

Kansas City 

In person or virtually / Free

Register at:

Registration Options (donorperfect.net)

For more information contact:

nfcentralplains@gmail.com

#NFStrong Walk/5k - Memphis

Sunday 11/10/24

9:00 AM CDT

Overton Park

Join TEAM NF TENNESSEE

2024 #NFStrong 5K - Memphis - Neurofibromatosis Network (nfnetwork.org)

Here are Youtube links to recent VICC Symposia:

-2021 VICC NF Symposium

-2022 VICC NF2 Symposium

-2022 VICC NF Symposium

we want your feedback!

We want your feedback on our Resource Page! Once you have looked over the resources, please fill out a short survey offering your feedback to be entered in a raffle for a gift card! 

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