The Children's Tumor Foundation is a national NF organization that upholds the mission to drive research, expand knowledge, and advance care for the NF community. They offer resources that include brochures and fact sheets on info for educators, info for navigating a new diagnosis, and more.
The NF Network is a non-profit organization founded in 1988 by a group of people who were in some way affected by neurofibromatosis. They are a national organization that advocates for federal funding for NF research and builds/supports NF communities.
The Acoustic Neuroma Association is a national NF organization that upholds the mission to provide resources for the acoustic neuroma community by informing, educating, and supporting those affected by acoustic neuroma brain tumors.
Neurofibromatosis Midwest is a non-profit organization dedicated to the increasing number of men, women, and children challenged by neurofibromatosis.They work to educate, comfort, improve clinical care and fund research for treatments and a cure. They offer online resources and support the following areas: Illinois, Wisconsin, Indiana, Iowa, Kentucky, and the eastern half of Missouri.
Part of the National Neurofibromatosis Network organization, NF Central Plains is a nonprofit organization that provides information and support to people with neurofibromatosis (NF), their families, and anyone interested in the disorder. They offer online resources and support the following areas: Kansas, Western Missouri, Oklahoma, Nebraska, and Colorado.
NORD is a non-profit advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.