Parent & Family Supports
NF Moms Rock is a group for moms/parents with children who have Neurofibromatosis. The group has been created as a safe place for individuals to vent, celebrate, support, and or connect with others.
Online Support Group
DailyStrength serves as a social network centered on support groups, where users provide one another with emotional support by discussing their struggles and successes with each other. Of the many online support groups, the Neurofibromatosis Support Group offers a venue where members can discuss and share topics regarding NF.
Locations: Johnson City; Bristol, TN - Mini Miracles Pediatric Therapy PLLC is a multi-service provider that offers the following services: occupational therapy; physical therapy; speech therapy; ABA therapy; counseling; academic tutoring; transition into adulthood services; extracurricular activities and camps; and support groups. They provide a variety of support groups in the following areas: sensory processing; mobility; sibling support; age group specific supports (i.e., under age 10 vs. 10+).
Nashville, TN - Tennessee Adult Brothers & Sisters (TABS) is a support and networking group for adult siblings of individuals with disabilities. They host social events as well as facilitate a sibling mentorship program.
Nationwide - The Children's Tumor Foundation (CTF) is a national NF organization that upholds the mission to drive research, expand knowledge, and advance care for the NF community. They have an online resource library with downloadable PDF documents on various topics such as guidebooks for parents, info for educators, and navigating a new diagnosis. They also offer PDF comic books explaining NF1 and NF2 in a way that is accessible to individuals of all ages.
Nationwide- The Arc is a national organization that promotes and protects the human rights of individuals with intellectual and developmental disabilities. The national website offers resources for siblings of individuals with disabilities including information on advocacy, supporting independence, and connecting with other siblings.
Respite care provides caregivers with temporary breaks from their caretaking duties.
D&S Community Services, Inc.
Locations: Chattanooga; Cookeville; Greeneville; Jackson; Knoxville; Maryville; Memphis; Nashville, TN - D & S Community Services offers a variety of services including respite care for individuals with intellectual and developmental disabilities.
Family To Family Adult Care Service
Bartlett, TN - Family to Family Adult Care Service provides adult respite care for individuals 18 years and older along with various other services.
The ARCH National Respite Network and Resource Center offers a search engine to locate respite care services as well as respite care funding options in every state.
Nashville, TN - The Tennessee Respite Coalition is a non-profit advocacy organization that provides relief to family caregivers from the extraordinary and intensive demands of providing ongoing care for loved ones. Their services include a statewide respite help line, family-directed voucher program, and senior companion program.
Nashville, TN - Catholic Charities of TN is a non-profit agency that provides services such as case management, referral services, family assistance, including distribution of food, and diaper assistance, as well as, temporary emergency financial assistance.