Parent & Family Supports

Support Groups

 

Facebook Group 

NF Moms Rock is a group for moms/parents with children who have Neurofibromatosis. The group has been created as a safe place for individuals to vent, celebrate, support, and or connect with others. 

Facebook Group

Moms of NF Teens & Young Adults is a group for families facing the unique needs adolescents and young adults with NF encounter.

Facebook Group

Neurofibromatosis Support is a group for individuals and and their families to connect with others impacted with NF.

Online Support Group

DailyStrength serves as a social network centered on support groups, where users provide one another with emotional support by discussing their struggles and successes with each other. Of the many online support groups, the Neurofibromatosis Support Group offers a venue where members can discuss and share topics regarding NF.

Facebook Group

Neurofibromatosis Friends & Family is a Facebook group to give those with Neurofibromatosis a chance to meet new people and make friends.

Facebook Group

Tennessee NF Community is a Facebook group for anyone touched by or interested in neurofibromatosis in the Middle Tennessee area.

Sibling Resources

 

Locations: Johnson City; Bristol, TN - Mini Miracles Pediatric Therapy PLLC is a multi-service provider that offers the following services: occupational therapy; physical therapy; speech therapy; ABA therapy; counseling; academic tutoring; transition into adulthood services; extracurricular activities and camps; and support groups. They provide a variety of support groups in the following areas: sensory processing; mobility; sibling support; age group specific supports (i.e., under age 10 vs. 10+). 

Nashville, TN - Tennessee Adult Brothers & Sisters (TABS) is a support and networking group for adult siblings of individuals with disabilities. They host social events as well as facilitate a sibling mentorship program.

Knoxville, TN - Sibshops are programs for siblings of children with special needs (ages 8-13) geared to provide a safe haven for siblings to talk, share, and support one another. 

Online Resource

Nationwide - The Children's Tumor Foundation (CTF) is a national NF organization that upholds the mission to drive research, expand knowledge, and advance care for the NF community. They have an online resource library with downloadable PDF documents on various topics such as guidebooks for parents, info for educators, and navigating a new diagnosis. They also offer PDF comic books explaining NF1 and NF2 in a way that is accessible to individuals of all ages. 

Nationwide- The Arc is a national organization that promotes and protects the human rights of individuals with intellectual and developmental disabilities. The national website offers resources for siblings of individuals with disabilities including information on advocacy, supporting independence, and connecting with other siblings. 

 

Respite Care

Respite care provides caregivers with temporary breaks from their caretaking duties.

Mt. Juliet, TN - All Ways Home Caring HomeCare provides in-home personal assistance care for individuals 13 years or older. 

D&S Community Services, Inc.

Locations: Chattanooga; Cookeville; Greeneville; Jackson; Knoxville; Maryville; Memphis; Nashville, TN - D & S Community Services offers a variety of services including respite care for individuals with intellectual and developmental disabilities.

BrightStar of Chattanooga

Chattanooga, TN - BrightStar of Chattanooga offers non-medical personal assistance services and respite care for family members of persons with disabilities. 

Family To Family Adult Care Service

(901) 337-2596

Bartlett, TN - Family to Family Adult Care Service provides adult respite care for individuals 18 years and older along with various other services. 

Online Resource

The ARCH National Respite Network and Resource Center offers a search engine to locate respite care services as well as respite care funding options in every state.

Locations: Memphis; Jackson; Clarksville; Brentwood; Knoxville; Chattanooga; Greeneville; Johnson City, TN - Maxim Healthcare Services is a home health company that offers in-home private duty nursing and respite care.

Nashville, TN - Mid-Cumberland Human Resource Agency is a social service agency that offers a variety of services including companion/ respite care services for individuals of all ages. 

Murfreesboro, TN - Pauline and Thomas Healthcare is a non-profit agency providing a number of different services including respite care for ages 22 and older. 

Nashville, TN - The Tennessee Respite Coalition is a non-profit advocacy organization that provides relief to family caregivers from the extraordinary and intensive demands of providing ongoing care for loved ones. Their services include a statewide respite help line, family-directed voucher program, and senior companion program.

Franklin, TN - Waves, Inc. is a community-based organization providing respite and personal care to individuals 22 years and older. 

Financial Assistance

 

Clinton, TN - Anderson County Community Action Commission offers financial assistance for utilities for all of Anderson County (excluding Oak Ridge Residents), and medication assistance once a year.

Tracy City, TN - Appalachia Women's Guild provides assistance such as canned goods, basic house hold items, clothing, and many others to community members in the Tray City area. 

Nashville, TN - Catholic Charities of TN is a non-profit agency that provides services such as case management, referral services, family assistance, including distribution of food, and diaper assistance, as well as, temporary emergency financial assistance.

Somerville, TN - Fayette Cares is a social service agency that offers services such as rent and utility funding, emergency food, clothing, house wares and school supplies, along with many others. 

Gallatin, TN - Gallatin C.A.R.E.S. is a social service agency that serves all ages with support in providing food, clothing, and small financial assistance. 

Locations: Knoxville; Chattanooga; Nashville; Memphis, TN - Ladies of Charity is a faith-based social service agency that provides emergency food, rent and utility assistance to residents within each location county. 

Memphis, TN - MIFA is a social service agency that offers financial assistance and food support to those in need.

Nashville, TN - Rooftop Foundation is a non-profit organization that offers living financial support to individuals who are experiencing hardships.