Dr. Paul Moots
- Jan 28, 2017
Children's Tumor Foundation NF Conference and Forum 2016 Recap
The annual CTF NF Conference and Forum took place in Austin, Texas June 18-21, 2016. Over 250 researchers including many from England,...
Dr. Paul Moots
- Jan 28, 2017
Q & A: Healthcare Perspective with Dr. Jennifer Brault
Dr. Jennifer Brault recently joined the Vanderbilt Children’s Hospital and Vanderbilt’s Neurofibromatosis Clinic. She is originally from...
Dr. Paul Moots
- Jan 27, 2017
Q & A: Family Perspective with Pennie Brooks
Pennie Brooks is a local NF advocate, activist, and organizer. She is a nurse who lives in Nashville and has a daughter with NF1. Q: What...
Dr. Paul Moots
- Jan 27, 2017
NF Worldwide
In any small community and even in some big ones, it is easy for patients with NF to feel that nobody in the community knows much about...
Dr. Paul Moots
- Jan 27, 2017
Ongoing Clinical Trials for NF-Related Issues
The following clinical trials and other NF-related trials can be found at ClinicalTrials.gov by searching “neurofibromatosis”. While some...
Dr. Paul Moots
- Jan 27, 2017
NF Registries
There are two major registries that are actively collecting information on NF patients: the CTF Patient Registry and the Washington...